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Council on Linkages Between Academia and Public Health Practice
Developing a Public Health Research
and Applications Agenda:
Tools for the 21st Century
Ron Bialek, M.P.P.
For many years, the public health practice community has
expressed frustration over the lack of applicable research to meet their needs. Too
often research which can benefit communities is not adequately translated or disseminated
in a manner which makes it of practical use. In addition, there is insufficient research
in health and medicine which focuses on human behavior, a critically important component
of public health. The practice community shares the perception that research is
driven by funding priorities, rather than by community needs, and that information and
input from the communities which can best use academic research is almost always excluded.
In March, 1998, the Council on Linkages Between Academia
and Public Health Practice (for a list of agencies represented on the Council, see page 2
of The Link) discussed proposed increases to the research
budgets for the National Institutes of Health, the Centers for Disease Control and
Prevention and the Agency for Health Care Policy and Research. It was felt that now
is an ideal time for bringing public and private sectors together to develop a
comprehensive and coordinated public health research and applications agenda. While
not meant to be prescriptive, and never meant to stifle creativity, this agenda will
provide guidance to both funders and researchers about the practice communityresearch needs that, if
met, will result in improved community health.
Improving the practice of public health will ultimately
require bringing the academic and practice communities together to conduct research, and
the Council recommends immediate action toward developing a national research and
applications agenda. Such an effort could be pursued under the leadership of the
Public Health Functions Steering Committeea group comprised of national leaders from federal, state, and local
agencies, academic institutions, associations, foundations, and a variety of other private
sector partner organizations.
Where to begin
Since the initial discussions by the Council in early
1998, there have been several meetings with the Public Health Functions Steering
Committee, its Working Group, and a subgroup of over 25 organizations convened
specifically for the purpose of exploring approaches for pursuing a research agenda.
These meetings have served to refine the scope of the activity, identify potential
benefits, establish a framework, develop a workable process, and enumerate end products.
An overarching consideration, however, is the need to involve both the private
(academe, industry, foundations) and public (local, state and federal) sectors in this
effort. This will help to ensure that a realistic and achievable approach is
developed.
Defining the scope of a research agenda
This activity will help determine existing and needed research to carry out the
Essential Public Health Services. The focus on the Essential Services is key,
because these are what are seen as necessary for preventing disease and promoting health
in communities. It will help to identify what exists that requires better
translation and dissemination for use in the field, as well as new research that is
needed. Stakeholders (both the users and producers of applied research) as well as
funders and policy makers (including key Congressional staff) will be engaged in this
effort.
One important step in refining the scope of this activity
is first determining other research agenda-setting efforts recently completed or underway.
For example, the Task Force on Community Preventive Services is helping to develop
science-based practice guidelines. Through the Task Forces efforts, research
gaps and needs are being identified. This effort, and others, will contribute to
development of a comprehensive research and applications agenda, as well as the
identification of new research being proposed to meeting determined and emerging needs.
Benefits
There are many who can benefit from development of a national public health
research and applications agenda. Funders are a main beneficiary, since the agenda
can provide an objective basis for decision making. Researchers will gain new
insights into needs of the practice community. Users of the research, such as local
public health systems, will be assisted through better translation and dissemination of
existing research, and development of applied research that will lead to more effective
program design. Through more effective programs, communities will benefit through
improvements in community health.
A research agenda that results in new research to address
priority needs will help in developing new chapters of the Guide to Community Preventive
Services. One of the greatest barriers to development of the Guide is the absence of
public health practice research. The agenda-setting activity will help to identify
research needs quickly, and result in research that can contribute to the science-base for
the Guide.
Framework
Possibly the most complicated, and controversial, aspect of the research and
applications agenda setting activity is defining the proposed framework. The Council
felt strongly that one of the goals of applied research should be to help achieve the over
500 national health objectives in Healthy People 2010. (The draft document is
undergoing revision and will be released in early 2000.) In addition, the research
should address ways to build capacity and more effectively carry out Essential Public
Health Services. Given this desire, the framework for the research agenda will
encompass health objectives and the Essential Services. Table 1 diagrams the
framework and the types of questions that will be asked within each of the cells. A
decision has not yet been made about whether to organize along broad topic areas within
Healthy People 2010, more detailed chapters, or, the finest cut, individual objectives.
Table 1 also indicates some options for priority setting.
A small working group, determined to see whether or not
this approach was feasible, took one proposed health objective for 2010 and tried to
identify important questions for each of the 10 Essential Public Health Services. In
less than a half hour, the group was able to identify numerous areas where research may be
desirable for helping to confine the incidence of HIV. Table 2 demonstrates how the
framework can work.
Table 1. Framework for a Public Health Research
and Applications Agenda
Essential Public Health Services
(Source: Public Health Functions
Steering Committee) |
Healthy People 2010 Objectives Categories:
| Promote
Health Behaviors |
Promote
Healthy and Safe Communities |
Improve
Systems for Personal and Public Health |
Prevent
and Reduce Disease and Disorders |
Chapters
Objectives (singular or grouped) |
1. Monitor health status to
identify community health problems
2. Diagnose and investigate health problems and health hazards in the community
3. Inform, educate, and empower people about health issues
4. Mobilize community partnerships to identify and solve health problems
5. Develop policies and plans that support individual and community health efforts
6. Enforce laws and regulations that protect health and ensure safety
7. Link people to needed personal health services and assure the provision of health care
when otherwise unavailable
8. Assure a competent public health and personal health care workforce
9. Evaluate effectiveness, accessibility, and quality of personal and population-based
health services
10. Research for new insights and innovative solutions to health problems. |
In each box
What do we need to know to be effective interventions,
causes, methodological research?
What do we know?
Information being used?
Need to better disseminate?
Need to better translate?
What do we not know?
What specific questions need to be answered?
What research is underway and when will it be
completed?
Priority setting
Take key dimensions of columns and rows
How important to know to deliver EPHS?
How doable?
How easy to answer question? |
Table 2. Example Cell
Essential Public Health Services
(Source: Public Health Functions
Steering Committee) |
Healthy People 2010 Objectives Categories:
Prevent and Reduce
Disease and Disorders
21 11 HIV: Confine Incidence to X |
- Monitor health status to identify community health problems
|
- Does name reporting make a difference?
- Do we know how to monitor?
- What proportion currently are diagnosed?
- What are barriers to getting diagnosed (e.g.,
confidentiality)?
|
- Diagnose and investigate health problems and health hazards
in the community
|
- How do you conduct a health risk appraisal in a community?
- How do you determine if a community is at risk?
|
- Inform, educate, and empower people about health issues
|
- How do you get people to practice safe behaviors? (e.g.,
condom use, needles, etc.)
- How do you inform communities of available
services/programs?
- How do you minimize and handle backlash to programs?
|
- Mobilize community partnerships to identify and solve health
problems
|
- How do we identify stakeholders groups?
- What are the motivations for mobilizing?
- Who are the appropriate spokespersons?
- How do you structure approaches to identify
"appropriate" stakeholders?
|
- Develop policies and plans that support individual and
community health efforts
|
- How do you sell needle exchange to a community?
- What is an effective community plan to needle exchange?
- Examples of any effective communication plans?
- How to research effectiveness?
- Tailoring plan to unique community characteristics?
|
- Enforce laws and regulations that protect health and ensure
safety
|
- How are laws "intelligently" enforced?
|
- Link people to needed personal health services and assure
the provision of health care when otherwise unavailable
|
- Effectiveness of counseling?
- Whats best way to limit transmission?
|
- Assure a competent public health and personal health care
workforce
|
- Current level of competence?
- Tradeoffs?
- Can this be assured effectively at the community level?
|
- Evaluate effectiveness, accessibility, and quality of
personal and population-based health services
|
- What are the dimensions of effectiveness, etc., in this
area?
- Generalizability?
- What questions need to be answered nationally? Locally?
|
- Research for new insights and innovative solutions to health
problems.
|
- What is relative contribution of each of the above?
|
Process
The framework described in Table 1 is complex and ambitious. The Council has recommended that a feasibility study be conducted to determine if
the framework is reasonable and if the stakeholders will truly benefit from such a
research agenda-setting process. The pilot will address two or three Healthy People
2010 chapters and/or objectives, with the Council serving as a steering group. The
feasibility study is to be completed within 12 months from the time funding is secured.
If the study indicates that the activity is feasible and desirable, the Council
will proceed to refine the framework and recommend to the Public Health Functions Steering
Committee development of a comprehensive public health research and applications agenda.
End products The primary product of a full-scale effort will be the development of a national public
health research and applications agenda. The agenda will provide guidance on public
health research priorities. In addition, it will provide a framework for
continuously updating the research agenda and for its further refinement. Finally,
it will serve as a framework for other agenda-setting activities.
The ability for this agenda-setting activity to create
"buy-in" from policy makers to public health research should not be
underestimated. As the first national effort of this type, involving private and
public sectors, researchers, practitioners, communities, and politicians, the priorities
that are developed will be primed for action.
A note of caution An agenda-setting activity, by nature, is meant to be directive. However, while this
effort will identify needs and priorities, it also will serve to encourage and promote
entrepreneurship around these agenda items as well as others that may not yet have been
identified through the process. At no time should researcher creativity not be
encouraged and permitted to flourish. No agenda-setting activity can identify all of
the current or future needs, and researchers will continue to be encouraged to add their
creative talents to the mix of research endeavors.
Your comments and suggestions, please To comment, provide suggestions, or if you would like to become involved in this activity,
please contact Ron Bialek, President, Public Health Foundation, 1220 L Street, N.W., Suite
350, Washington, D.C. 20005; phone: 202.218.4400; fax: 202.218.4409;e-mail:
rbialek@phf.org.
Bibliography As part of the effort to develop a public health research and applications agenda, it will
be necessary to determine what already has been done in this area, what efforts currently
are underway, and what other literature can help inform the process. The following
represents the beginnings of a bibliography on this topic.
Association of Schools of Public Health, Testimony
Submitted to the IOM Committee on the NIH Research Priority-Setting Process, Diane
Hoffman, Washington, D.C., April 3, 1998.
Bruce, T.A., "Community Health Science: A Discipline
Whose Time Has Already Come," Research Linkages Between Academia and Public Health
Practice, supplement to American Journal of Preventive Medicine, Vol. 13, No. 3, 1995.
Coburn, A.F., "The Role of Health Services Research in
Developing State Health Policy," Health Affairs, Volume 17, Number 1,
January/February 1998.
Executive Office of the President, Office of Science and
Technology Policy, Meeting the Challenge: A Research Agenda for Americas Health
Safety, and Food, developed by the National Science and Technology Council Committee on
Health, Safety, and Food, Washington, D.C., February, 1996.
Green, L.W., and Stoto, M.A., "Linking Research and
Public Health Practice: A Vision for Health Promotion and Disease Prevention
Research," Research Linkages Between Academia and Public Health Practice, supplement
to American Journal of Preventive Medicine, Vol. 13, No. 6, 1997.
Health Education Quarterly, August, 1995, Volume 22, Number
3. Theme issue: Creating Capacity: A Research Agenda for Public Health Education.
Institute of Medicine, National Academy of Sciences, NIH
Research Priority-Setting Process, 1998.
Israel, B., et.al., "Review of Community-Based
Research: Assessing Partnership Approaches to Improve Public Health," Annual Reviews:
Public Health, 1998, 19:173-202.
National Institutes of Health, Setting Research Priorities
at the National Institutes of Health, September, 1997.
Nelson, A.F., Quiter, E.S., and Solberg, L.I., "The
State of Research Within Managed Care Plans: 1997 Survey," Health Affairs, Volume 17,
Number 1, January/February 1998.
Rosenstock, L., Olenec, C., and Wagner, G., "The
National Occupational Research Agenda; A Model of Broad Stakeholder Input into Priority
Setting," American Journal of Public Health, March 1998, Vol. 88, No. 3.
Task Force on Community Preventive Services, web site
http://www.health.gov/communityguide/,
1998.
White House, 21st Century Research Fund, Washington, D.C.,
January 2, 1998.
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