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Resources on this page are divided into the following two categories:
Additional information about public health data and data systems is available through the
Public Health Infrastructure Resource Center.
Using Data
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Administrative Simplification in the Health Care Industry
Located at the Department of Health and Human Services, Office of the Assistant Secretary
for Planning and Evaluation website are links to the following focus
areas: (1) HIPAA Transactions, Code Sets, Security and Identifier
Standards (2) HIPAA Health Information Privacy Standards.
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Case Definitions for Public Health Surveillance - This CDC document provides case definitions for use by health-care providers, laboratories, and other public health personnel who report the occurrences of notifiable diseases to state and local health departments.
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Finding and Using Health
Statistics: A Self-Study Course The National Information Center on Health Services
Research and Health Care Technology (NICHSR) of the National Library of Medicine has added
this distance learning program to its website. This course will provide librarians,
health services researchers, and public health professionals with some basic concepts for
understanding health statistics, as well as pointing to some invaluable Internet portals.
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AHRQ National Resource Center for Health Information Technology
Developed to help the health care community make the
leap into the Information Age. In addition to providing technical
assistance, the National Resource Center shares new knowledge and findings
that have the potential to transform everyday clinical practice.
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Massachusetts
Health Data Consortium The Consortium works with hospitals, government planners,
employers, purchasers, labor, HMOs, insurers and academic researchers to produce reports
relating to: the health status of the population, marketing and planning of health
services, the socioeconomic characteristics of the population, community needs, health
facilities, services and manpower, and private and public sector health insurance
plans. A good resource for health data tools and reports and information on health
data standards issues.
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MCH Analytic Skills Online A cooperative agreement with the
Maternal and Child Health Bureau, Health Resources and Services
Administration. Located at the University of Illinois at
Chicago, School of Public Health, Center for the Advancement of Distance
Education, the project uses internet-based technologies to develop
and disseminate analytic skills training for maternal and child health (MCH)
and children with special health care needs professionals.
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National Health Information Infrastructure (NHII) The NHII is: an
initiative set forth to improve the effectiveness, efficiency and overall
quality of health and health care in the United States; a comprehensive
knowledge-based network of interoperable systems of clinical, public
health, and personal health information that would improve decision-making
by making health information available when and where it is needed; the
set of technologies, standards, applications, systems, values, and laws
that support all facets of individual health, health care, and public
health; and finally, it is voluntary and not a centralized database of medical records or a
government regulation.
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Privacy Toolkit for
Public Health Professionals (PRISM) - The PRISM privacy tool provides
state and local government health programs, and public health departments
and programs in particular, with a convenient and useful way to understand
the basic legal privacy requirements for identifiable health information use
and disclosure.
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Public Health Data Standards Consortium
(PHDSC)
The Consortium is a
coalition of organizations committed to the promotion of data standards for public health
and for health services research through the collaboration of state, federal, and private
sector organizations. The PHDSC has launched a Web-based Resource
Center at http://phdsc.org to expand educational
resources, inform stakeholders, and organize public health data
standardization efforts. Visit this site for information on HIPAA,
HL7, XML, and other standards and standards-related efforts that affect day-to-day public health challenges.
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Public Health Information Network (PHIN) The CDC Public Health
Information Network is a national initiative to improve the capacity of
public health to use and exchange information electronically by
promoting the use of standards, defining functional and technical
requirements. PHIN strives to improve public health by enhancing
research and practice through best practices related to efficient,
effective, and interoperable public health information systems.
Sources of Data
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Behavioral Risk Factor and Surveillance System (CDC)
The worlds largest, on-going telephone health survey system, tracking
health conditions and risk behaviors in the United States yearly since
1984. BRFSS provides state-specific information about issues such
as asthma, diabetes, health care access, alcohol use, hypertension,
obesity, cancer screening, nutrition and physical activity, tobacco use,
and more.
- CDC WONDER - A single point of access to a variety of CDC reports, guidelines, and numeric public health data, this site provides
links to over 70 text-based and numeric databases. At several of the
linked sites users can request data for diseases and demographic groups by submitting ad hoc queries against available datasets. CDC WONDER also provides free-text search facilities and document retrieval from several bibliographic databases. For more information regarding CDC databases, visit the CDC Data and Statistics page.
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Child Trends DataBank
This resource includes the latest national trends and research on over
100 key indicators of child and youth well-being including: continuously
updated trend data with the latest national estimates for all
indicators; plain language reporting on trends and population subgroup
differences informed by existing research; color graphics and tables
that can be downloaded directly into reports and presentations; PDF
files for each indicator containing text, graphics, and tables in a
concise and attractive format; and links that provide organized access
to additional information available for each indicator.
- Data
Resource Center (DRC) for Child and Adolescent Health An easy-to-use public website that eliminates
barriers and reduces time and resources needed to obtain key findings on
the health and health care of children, youth, and families. The DRC
includes standardized indicators from the two most recent and
extensive state-based surveys on the health and health care of children,
youth, and families - The National Survey of Children's Health (NSCH) and
The National Survey of Children with Special Health Care Needs (NS-CSHCN).
These indicators are available for you to search and compare by subgroups
such as age,
race/ethnicity, income, and health status.
- Healthcare Cost & Utilization Project (HCUP) - This family of health
care databases and related software tools and products was developed developed through a
Federal-State-Industry partnership. The Agency for Healthcare Research
and Quality (AHRQ) sponsors HCUP, and their
fact sheet
summarizes available resources. HCUP includes State Inpatient Databases
(SID); State Ambulatory Surgery Databases (SASD); State Emergency
Department Databases (SEDD); Nationwide Inpatient Sample (NIS); and
Kids' Inpatient Database (KID).
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Health Services and Sciences Research Resources
(HSRR) – A public health systems research (PHSR) search
utility database located at the National Information Center on Health
Services Research and Health Care Technology (NICHSR)/National Library
of Medicine site that helps researchers find datasets, instruments/indices, and software to assist in conducting PHSR.
The University of Kentucky College of Public Health developed this
searchable PHSR database in conjunction with the National Library of
Medicine (NLM) and sponsorship from the Robert Wood Johnson Foundation.
Records describe data available from public health organizations and
programs such as the National Association of County and City Health
Officials (NACCHO) Profile of Local Health Departments and National
Public Health Performance Standards Program dataset.
- Injury Databases & Published Statistics - The Injury Control Resource Information Network is sponsored by the Center for Injury Research & Control at the University of Pittsburgh. It includes
annotated links to injury mortality databases, injury hospital discharge databases,
emergency department databases, transportation databases, occupational
injuries databases, crime databases, demographics
databases, mapping (GIS) databases, administrative (hospital and agency
listings) databases, and a coroner database. Also included are injury data
publications links.
- Morbidity and Mortality Weekly Report (MMWR) - Reports include data for nationally notifiable diseases reported by the 50 states, New York City, the District of Columbia, and the U.S. territories.
- National Center for Health Statistics (NCHS):
Surveys and Data Collection
Systems NCHS has two major
types of data systems: systems based on populations, containing data
collected through personal interviews or examinations; and systems based
on records, containing data collected from vital and medical records. It
includes the following major surveys, systems, and studies:
National Health Interview Survey, National Health and Nutrition
Examination Survey, National Health Care Survey, National Vital
Statistics System (data files and surveys), National Survey of Family
Growth, National Immunization Survey, The Longitudinal Studies of Aging
(LSOAs), and the State and Local Area Integrated Telephone Survey.
Associated surveys are included under some of the major survey headings.
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Partners in Information Access for the Public Health Workforce: Health
Data Tools and Statistics -
A collaboration of U.S. government agencies, public health organizations
and health sciences libraries, this National Library of Medicine site offers comprehensive links to
health statistics and data sets as well as resources to support data
collection. Included are links to national, state, and local data related
to health status, preparedness, public health infrastructure, and public
health systems. Also available are tools for data collection and
planning.
- PeriStats An interactive perinatal
data resource from the March of Dimes. Search for free US, state,
county, and city maternal & infant health data. Over 60,000
graphs, maps and tables available.
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Quick
Health Data Online - This Department of Health and Human
Services site offers data for women and men regarding a variety of infectious and chronic diseases, mental health, reproductive health,
maternal health, violence and abuse, illness prevention, mortality, and
access to care indicators. National, regional, state, and county data are
available, and data can be stratified by gender, race/ethnicity, and age
concurrently. Users can make their own tables, graphs, and maps out of any
data in the database. Age-adjusted rates and 3-year averages are included
for many of the health status indicators.
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State Health Facts Online - Searchable state heath data comparisons and individual state profiles for all 50 states
and the District of Columbia. Includes state demographic data and indicators in
areas such as demographics and the economy, health status, health
coverage and uninsured , Medicaid and SCHIP, health costs and budgets,
Medicare, managed care and health insurance, providers and service use,
minority health, women's health, and HIV/AIDS. The site is a Kaiser Family Foundation product.
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StatePublicHealth.org A product of the Association of
State and Territorial Health Officials (ASTHO) and ASTHO affiliates designed to facilitate
the dissemination of basic state-based public health information. Users can search
all state health agency web sites by keyword, or query state health agency profiles on
topics such as agency responsibilities, governance, and required qualifications of
officials.
The site includes annotated resource links
for state health agencies.
- TOXNET (Toxicology Data Network) - Developed by the National Library of Medicine's
Toxicology and Environmental Health Information Program, this is a compilation of databases
related to toxicology and environmental health. The databases accessible via TOXNET
include HSDB (Hazardous Substances Data Bank), TOXLINE (Toxicology Literature OnLINE),
CCRIS (Chemical Carcinogenesis Research Information System), GENE-TOX, IRIS (Integrated
Risk Information System), DART (Developmental and Reproductive Toxicology),
ChemIDplus - Dictionary of over 370,000 chemicals, ITER (International
Toxicity Estimates for Risk), LactMed (Drugs and Lactation Database) Haz-Map
- Information on Hazardous Chemicals and Occupational Diseases,
Household Products - Health and Safety Information on Household
Products, TOXMAP - Environmental Health e-Maps, and TRI (Toxic
Chemical Release Inventory).
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Updated 11-25-07 |